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Mon, Jun. 7th, 2010 08:44 pm
sasha_feather: Retro-style poster of skier on pluto.   (Default)
[personal profile] sasha_feather
[personal profile] megwrites: SF and ablism (or: a not-as-such brief thought)

It seems as though when science fiction envisions a better, or at least more advanced, version of humanity it is one without disability, and thus one without disabled people. When you imagine a future without disability, it is a future in which you imagine that there are no disabled people.
sasha_feather: dolphin and zebra gazing at each other across glass (dolphin and zebra)
[personal profile] sasha_feather
Now with quotes because it's what the other cool linkspammers do!

FWD/Forward: Guest post from RMJ: Ableist Word Profile: Crazy

Crazy [is] a destructive word, used to hurt people with mental disabilities. It’s used to discredit, to marginalize, to make sure that we feel shame for our disability and discourage self-care, to make sure that those of us brave enough to publicly identify as having mental disabilities are continually discredited.

[personal profile] kaz: Ableist words and all that

This is what I have discovered by trying to rid my vocabulary of those words: one of the main things I use them for is to hurt myself. Whenever I think I've done something wrong or remember something I think I did wrong, I turn them inwards.

[personal profile] telesilla: 3w4dw -- Day ???

I don't need to explain to anyone why I'm on government assistance, because you know what? It's none of anyone's damn business.
the_jack: a low-res style drawing of Te and Jack (Default)
[personal profile] the_jack
Inspired by both the Physical Disability Bingo Card and the Invisible Disability Bingo Card (and IDBC the sequel), I'd like to make a bingo card highlighting the horrifically unhelpful things people with disabilities all too often hear from people who should really, really know better: doctors (and other medical personnel including but not limited to nurses and EMTs, but primarily doctors).

My personal "favourite" is when I see a doctor for a follow-up appointment after they've ordered some tests, and they announce to me, "Great news! You don't have [insert diagnosis here]!" without actually having the real good news that they've identified the cause of the symptoms I came to them about. Especially when this is then followed by them essentially washing their hands of me, as they've looked for "everything" and "all the tests came out normal." Thanks, genius, unless your statement alone magically makes my body work again, it's not helpful at all.

I know other people probably have their own contributions to this category of fail!statements and fail!questions, and other people may come up with better phrasing than mine for many of them. (Brevity, alas, is rarely one of my virtues.) So please, contribute your own "favourite" inanities you've heard from doctor after doctor.

Another favourite of mine is "I'm not filling out any disability paperwork for patients (any more)" -- sometimes phrased as, "If you want the doctor to fill out disability paperwork, there's a fee of $___ for each form, which your insurance won't cover because oh right, it's actually illegal for us to charge for that especially when we're already billing for the office visit."

Then there's "No, I won't prescribe that medication for you, even though it's neither controlled nor a risk for addiction, and I actually don't have any particular reason for refusing, I'm just being stubborn."

Yet another favourite, though I haven't run into it personally in years, is "Either you really have that symptom/condition, OR you know some technical terms used to describe it in medical literature and other exclusive content like WebMD and Wikipedia; any patient who comes in and uses the correct terms to discuss either a symptom they claim to have or a specific diagnosis they want to be checked for is obviously either a hypochondriac, a malingerer or both!"

edited to add:
"If you just go back to your regular routine, you'll be feeling yourself again in no time." (Yes, this is different when it's actual medical advice and also being given in place of appropriate medical care, as opposed to when some doubtless-well-meaning layperson says it.)
and
"Your presenting with both symptom A and symptom B is suspicious, despite the fact that at least a dozen recognised illnesses feature both symptoms as common and/or diagnostic."
and
"I see that you're taking medication X, based on which I will assume that you have condition B, even though you helpfully wrote right next to the medication name and dosage that the medication was actually prescribed to treat condition A, and even though you wrote in the medical-history section that you have condition A and made no mention of condition B."

Although I've heard things like "but you're so young!" and "you seem fine / don't look disabled" from doctors and other medical professionals, I'm aiming for things which are profession-specific and haven't already been addressed on one of the other bingo cards.

As you can see I need help trimming these down from rant-size to bingo-card size, so suggestions toward that end are appreciated.


While I'm here... I've been wondering how screen readers and/or other assistive technology handle emphasised text, be it bolded, underlined, italicised or formatted with some other HTML tag, and whether some tags are more likely than others to get dropped by (or become illegible to) people using various kinds of assistive technology. Toward that end, some examples so people can tell how their tech does at letting them know what formatting the writer has applied:

1. This sentence has no HTML formatting tags.

2.
This sentence is enclosed in HTML "pre" tags.


3. This sentence is enclosed in HTML "B" (bold) tags.

4. This sentence is enclosed in HTML "U" (underline) tags.

5. This sentence is enclosed in HTML "I" (italic) tags.

6. This sentence is enclosed in HTML "em" (emphasis) tags.

7. This sentence is enclosed in HTML "S" (strikethrough) tags.

8. This sentence is enclosed in HTML "sub" (subscript) tags.

9. This sentence is enclosed in HTML "sup" (superscript) tags.

Those are most of the tags I use. If there are other tags other people use frequently and are willing to change their usage of, if necessary, so that their intended meaning can be better conveyed to those using assistive technology -- or tags that people who use assistive technology know don't come through for them -- please comment, and I'll modify this post to reflect those, too. Please also note which software and/or hardware you're using, not so much for me as for other AT users, so we can helpfully compare how text renders in different programs. I encourage people using magnification (or some other assistive technology) rather than or in addition to a screen-reader to contribute their experiences as well.

Finally, does the "fandom heart" emoticon, <3 (less-than / pointy-bracket numeral-three) get lost in translation for anyone? Would the ASCII ♥ be better?

(Please also suggest any tags -- post tags, that is, not html tags -- I ought to have included but didn't. Or, actually, other html tags would also be good! But for different purposes.)
sasha_feather: Retro-style poster of skier on pluto.   (Default)
[personal profile] sasha_feather
ETA: Temporarily removing these links until the bingo card is altered to fix disabling language.

[livejournal.com profile] haddayr: Phsyical Disability Bingo Card

[livejournal.com profile] dot_gimp_snark: Crosspost of Physical Disability Bingo Card

(comments recommended at both places)
aris_tgd: Wheelchair Ballroom, text: "Dance" (dance)
[personal profile] aris_tgd
(As I love this community and would like to see more traffic here, I thought I'd crosspost a more general-discussion-friendly post I made on the third episode of Dancing on Wheels. This draws a lot from what I've learned about disability portrayal in media from this community and from FWD/Forward, but I'd like to emphasize that while I'm interested in ally work I don't myself ID as a PWD. Or British, for that matter.

This is adapted slightly from when it was originally posted at my DW account and contains spoilers for Episode 3 of the series.)


So the drama in Episode 3 of Dancing on Wheels is interesting because it's the first time on the show they've really talked about the representation of people with disabilities on and because of the show. And given the subject, I'd like to talk about the edit that the producers gave Simone and Harry this week.

Firstly, I want to say that this post isn't about either Simone or Harry as people. But I think we all know that producers and editors manipulate footage to tell a story, and it's the story that I'm critiquing, not the people involved.

Spoilers under the cut )

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